Rare diseases are denoted as such based on their prevalence—the specific rate at which they are considered rare depends on where you live. For example, according to the Rare Disease Day website, in Europe, a rare disease or disorder will affect fewer than 1 in 2,000 people. In the US, that same disease or disorder would be considered rare if it affects fewer than 0.01% of the population—or fewer than 200.000 Americans. 
There are over 6000 existing rare diseases, 80% of which have identified genetic links.  The others are caused by bacteria or viruses, environmental factors, or allergies.  This list contains the more “common” forms of rare conditions—do you know anyone with these diagnoses?
Medical ID for Rare Disease
Outside of specialists treating patients with these rare diseases—in which the specialties themselves will vary based on the disease/symptom presentation—depending on the rarity of the disease, doctors may not have any knowledge of a patient’s rare disease and their medical needs. As well, patients with rare disease may take multiple medications or be on experimental or unapproved/compassionate treatments, making it of greater importance emergency medical teams can make the right decisions when providing care.
Custom medical ID jewelry for rare diseases is important as the patient is enabled to engrave exactly what they wish their medical ID to communicate. At My Identity Doctor, we focus on providing bold, black engraving to ensure your message is not confused in important moments, protecting your life safety.
What to engrave on rare disease medical bracelet
Your doctor can help you decide what is best to engrave. Consider including your name and diagnosis/diagnoses, any immediate medical needs, your treating doctor’s name and phone number, and “see wallet card”. That way, you can include a list of current medications in your wallet and update them as things change. You can also include an emergency contact on your bracelet if you have room, or on your wallet card. Wallet cards come free with every My Identity Doctor ID product, so it’s easy to pair one with your rare disease necklace or ID bracelet! If you are in a clinical trial, consider wearing a clinical trial ID bracelet to help treating doctors locate the study sponsor or clinic for important information in an emergency.
Rare Disease Month
February is Rare Disease Month, and February 28th is Rare Disease Day. To learn more about rare disease, check out these My Identity Doc interviews!